ME/CFS or myalgic encephalomyelitis/chronic fatigue syndrome is a disease that few people are familiar with; that is, unless they are unlucky enough to be one of its victims. The National ME/FM Action Network describes ME/CFS as:
"...an acquired illness that affects all body systems; predominantly the neurological, endocrine and immune systems."
What are the Symptoms of ME/CFS?
I had never heard of this disease until one of my closest friends suddenly found herself battling what we now know to be the symptoms of ME/CFS:
- Extreme tiredness
- Loss of stamina. both physical and mental
- Sleeping problems
- Muscular and/or pain in joints and headaches
Those ill with ME/CFS also experience two or more of the following symptoms:
- Confusion
- inability to concentrate
- Problems with short-term memory
- Problems finding words
- Vision problems
- Hypersensitivity to noises and light
- Anxiety
Why is ME/CFS So Difficult to Diagnose?
Not only do the symptoms listed above have to endure for seven months or more, before a diagnosis is even possible, but victims of this illness must also be experiencing one or two other health problems, which might include flu symptoms, heart palpitations, over- or under-eating and many more. For the conclusive list, visit the National ME/FM website, or talk to your doctor.
Is ME/CFS a Common Disease?
This is an illness that is often diagnosed in its very late stages, or not at all, so it is difficult to label it a 'common' disease. Doctors do know that the incidence of ME/CFS is higher than the two leading cancers – breast and lung – so there are many people who suffer from this condition. For example, 150,000 Canadians are known to have the disease.
ME/CFS does not discriminate when it comes to age, race or class. Children as well as adults suffer from this illness, but it does attack more females than males.
How do I Know If I Have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?
This was a question that I saw my friend struggle to answer for years. During that time, as the disease progressed, she was forced to sell her successful business and give up on a career. Once an avid athlete, there were days when she could not get out of bed, let alone out of her house. Seemingly flattened by terrible flu symptoms, and at loss as to why she never felt rested; she was frightened and confused. Frustrated with the lack of a diagnosis, she did what her doctor had not done – she started to research her symptoms and came across the National ME/FM Network. Since that time, she has regained much of her health, although she remains unable to work full-time.
If you are exhausted all the time, feel like you've got a flu that never ends and can't recover from even the most low-key exercise, than perhaps it's time to do a little research of your own.
Although this disease is not curable, it can be managed and with the right care and treatment, most people with ME/CFS can lead satisfying lives.
Sources
National ME/FM Network Patient's Pamphlet (2011)
Dr. Bruce Carruthers, Lead Author, ME/CFS Consensus Document
Disclaimer: The information contained in this article is for educational purposes only and should and should not be used for diagnosis or to guide treatment without the opinion of a health professional. Any reader who is concerned about his or her health, should contact a doctor for advice.
Julie Burtinshaw - Julie is the Reading and Literature and Writing and Publishing Editor for Suite101.com. She is also the author of five books and is ...
